strongest families

Strongest Families– Fetal Alcohol Spectrum Disorder is a research program developed by Nova Scotia’s Centre for Research in Family Health at the IWK Health Centre in conjunction with the FASD Research Program at Queen’s University. The program was devised in response to the need for services and supports for those with FASD as well as empirical data to influence the delivery of those services. Funding for the program has come from CIHR’s Partnerships for Health Services Improvement, NeuroDevNet, and the Public Health Agency of Canada.

The program uses input from key stakeholders to determine the need for services and supports and develop and evaluate a distance training program for parents/caregivers. The efficacy and feasibility of the intervention, as well as program outcomes, will be examined in a randomized control trial.

This research is interwoven with elements of knowledge translation, as researchers and knowledge users (i.e. families, health professionals, etc.) have been involved heavily in the process from the beginning.

The Strongest Families program has shown success in populations with neurodevelopmental disorders, and will be adapted for families with FASD. One advantageous aspect of the program is that it eliminates the need for families to travel to an intervention site on a regular basis, allowing participants to complete the intervention in their own homes and allowing the researchers to recruit participants from across the country.

The study team is currently building its recruitment network. If your clinic or organization is interested in supporting this trial by making study information available through your offices (posters/brochures) or websites, please contact Sue Kobus, Recruitment Coordinator at Queen’s University or Karen Turner, Study Coordinator at IWK Health Centre, Halifax, NS.

Recruitment will begin late spring 2014. Caregivers will be able to apply online.

Contact Information:

Dr. Patrick McGrath: patrick.mcgrath@iwk.nshealth.ca

Dr. James Reynolds: jnr@queensu.ca

Karen Turner: karen.turner@iwk.nshealth.ca

Toll-free: 1-877-341-8309 (menu item 4, then 1)

Sue Kobus: smk1@queensu.ca

Toll Free: 1-877-341-8309 (menu item 4, then 2)
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