Originally posted on Edmonton and area Fetal Alcohol Network Society:

April

Here is the latest FASD Frontline Newsletter.  This month the newsletter focuses on relationships and sexuality.

April 2014

View original

Originally posted on Girls, Women, Alcohol, and Pregnancy:

FASDInformedPracticeFinalVersionSeptember9-2013_pdf

FASD informed practice can include:

  • An awareness that FASD (diagnosed and undiagnosed) is a reality for many individuals involved with a variety of community-based programs
  • A strong theoretical and practical understanding of the traits, characteristics, barriers, and needs of those affected by FASD
  • A willingness on the part of program staff, including administration, reception, and frontline workers, to participate in ongoing FASD education and training initiatives
  • Agency policies that accommodate the unique needs of individuals living with FASD in order to create a program that works for all participants
  • A respectful and individualized approach to service delivery that recognizes individual strengths

This guide from the College of New Caledonia is designed to assist programs in providing FASD-informed services and supports. The approaches discussed were developed from evidence-based research and from the practical experience of individuals working with women and their families who may be living with FASD.

The guide includes…

View original 77 more words

MOFAS

 

In light of our last post on “ReMoved,” a film about foster care, we would like to share with you a foster care related event hosted by MOFAS.

On April 29, 2014, MOFAS will host “Creating Permanency for Foster and Kinship Families“, an event for parents, caregivers, and professionals. The event will discuss the challenges facing families caring for a child with difficult behaviours and offer techniques to develop solutions. For more information and contact info, see the link above.

Unfortunately, this is not an online event and is only offered in Minneapolis, so for those of you in the Minneapolis area: Enjoy!


This film may resonate with some of the caregivers out there.

ReMoved is an artistic portrayal of one child’s experience  in the foster care system. The film has won several awards from the 168 Film Festival in California and the Enfoque International Film Festival in Puerto Rico for its emotional representation of a the removal of a child from her biological family and subsequent foster placements- an experience many children with FASD are all to familiar with.

Several studies have examined the prevalence of children in care with FASD. In 2005, Fuchs et al. found that Canada’s own Manitoba had 1869 children in care with a disability. Thirty four percent of those children were diagnosed with an FASD. An additional 15% were suspected of having FASD but had not received a formal diagnosis. These numbers are disproportionately higher than the estimated prevalence of FASD in Canada, which is believed to be approximately 1% (Stade et el. 2009). In Chile, approximately 6.2% of children in care had FAS and approximately 15.8% had FASD (Mena et al. 1993). Russian foster homes and orphanages were reported to have approximately 15% FAS prevalence and approximately 42.7-68% FAS prevalence in orphanages specifically for children with special needs (Bubnov 2010). Brazilian orphanages reported similarly high numbers, with 27.7% of children having FASD (Stromland et al. 2011).

In addition to reviewing the familial factors that affect the outcomes of individuals with FASD,  Olson et al. (2009) reviewed the effects on the family of caring for a child with FASD. Findings included good quality of caregiving and  stability in the home as vital aspects to successful outcomes for those with FASD. The authors noted parental stress, lack of family support resources, need for constant vigilance, stress on marriage, and concerns about parenting and child management as some of the difficulties faced by families caring for individuals with FASD.

Clearly the need for effective foster placements is high, as this film strikingly demonstrates. For ideas on finding support for caregivers, visit our “caregiver support intervention options” page on KnowFASD.

 To our readers:

Did this film resonate with you as a caregiver? As an individual? Leave a comment to share your thoughts.

 

References:

Bubnov, A. A. (2010). Morfo-funktsional’naya diagnostika posledstviy vnutriutrobnogo alkogol’nogo vozdeystviya u detey rannego vozrasta. [Morpho-functional diagnosis of the consequences of prenatal alcohol exposure during pregnancy in early childhood]. Avtoreferat dissertatsii kan med nauk Pediatriya. [Dissertation Abstract, PhD. Pediatrics]. Yekaterinburg, Russia.

Fuchs, D., Burnside, L., Marchenski, S., & Murdy, A. (2005). Children with disabilities receiving services from child welfare agencies in Manitoba.Ottawa, ON: Centre of Excellence for Child Welfare. Retrieved from http://www.cecw-cepb.ca/sites/default/files/publications/en/DisabilitiesManitobaFinal.pdf.

Mena, M., Navarrete, P., Avila, P., Bedregal, P., & Berrios, X. (1993). Relation of paternal alcohol ingestion with offspring intellectual coefficient. Revista Medica de Chile, 121, 98–105.

Olson, H.C., Oti, R., Gelo, J., & Beck, S. (2009). “Family matters”: Fetal alcohol spectrum disorders and the family. Developmental Disabilities Research Reviews, 15, 235-249.

Stade, B., Ali, A., Bennett, D., Campbell, D., Johnston, M., Lens, C., Tran, S. & Koren, G. (2009). The burden of prenatal exposure to alcohol: revised measurement of cost. Canadian Journal of Clinical Pharmacology, 16, 91-102.

Strömland, K., Ventura, L. O., Mirzaei, L., Brandt, C., Fontes, K., Moura, A., et al. (2011). Fetal alcohol spectrum disorders in orphanage children in Brazil: A multidisciplinary study. Birth Defects Research Part A—Clinical and Molecular Teratology, 91, 332.

fronteir regional

The  Frontier Regional FASD Training Center is hosting a free webinar tomorrow titled “Resiliency in Families Living with FASD” presented by Kathy Mitchell of NOFAS.

The webinar runs from 11:00 AM – 12:00 PM Pacific time and requires registration.

The webinar will discuss stress related to parenting a child with FASD. Characteristics of resilient families will be covered, along with suggestions for dealing with stress to foster communication, understanding, and acceptance.

The Canada Northwest FASD Partnership will host a symposium In March 2014 aimed at sharing strategies to improve the lives of those with FASD and preventing future incidence.

symposium

When: March 4-5, 2014
Where: Yellowknife, NWT
Conference Website

Keynote and panel topics of discussion include: FASD 101 Training Professionals, Traditional Knowledge and Culture in Prevention and Intervention, Northern Lived Experience, The History of FASD, Trauma Informed approaches to FASD, FASD and Practice: Justice and Corrections, Fostering Healthy Community Supports, and FASD and Employment.

Symposium presenters include Dr. Amy Salmon,  The Honourable Judge Bonnie Tulloch, Marilyn Van Biber, Dr. Nancy Poole, The Honourable Judge Sheila Whelan, and Dr. Sterling Clarren. There will be youth workshops each day facilitated by Myles Himmelreich and Tom Simes.

Improving Awareness and Treatment of Children with FASD and Co-Occurring Psychiatric Disorders
When:  January 15, 2014,  2:00 – 3:00 PM EST
Webinar presented by NOFAS on FASD and psychiatric disorders including discussion surrounding history, experiences, diagnosis, treatment, and recommendations. For related information, see the article “Improving Awareness and Treatment of Children with Fetal Alcohol Spectrum Disorders and Co-Occurring Psychiatric Disorders”, prepared by the Disability Service Center JBS International Inc.

Raising a Child with FASD
When: January 16, 2014, 12:00 – 1:30 PM CST
Webinar for current and prospective caregivers and professionals providing an overview of FASD and discussion of what it is like to raise a child with FASD

The Substance Abuse and Mental Health Service Administration (SAMHSA) FASD Centre for Excellence and the Minnesota Organization on Fetal Alcohol Syndrome(MOFAS) present a series of 3 webinars:

1) FASD Basics
When:
February 13, 2014, 12:00 - 1:30 PM CT
Dr. Jeff Wozniak provides a basic introduction to FASD

2) FASD and Co-Occurring Issues
When: February 20, 2014, 12:00 – 1:30 PM CT
Dan Dubovsky discusses the co-occurrence of FASD and mental health issues

3) Family Matters: Strategies for Successful Outcomes
When:
February 27, 2014, 12:00 – 1:30 PM CT
Dr. Chris Boys and Dan Dubovsky discuss strategies for front line workers and caregivers of individuals with FASD

Don’t forget; tomorrow (December 18th, 2013) holds two great FASD webinars: “Trauma and Addiction” from the Alberta Learning Series and “The CIFASD: From the Lab to Changing Lives” from NOFAS

Trauma and Addiction

When: December 18, 2013, 9:00-11:00 AM, MST

Kirsty Prasad discusses the relationship between trauma and substance abuse as well as the similarities between the presentation of trauma and substance use. Trauma informed principles will be covered.

Register

The CIFASD: From the Lab to Changing Lives

When: December 18, 2013, 2:00-3:00 PM, EST

Dr. Edward P. Riley discusses the Collaborative Initiative on Fetal Alcohol Spectrum Disorders (CIFASD), an international association of researchers and clinicians working to increase our knowledge of FASD. The webinar will provide an overview of CIFASD and cover findings from the organization’s recent clinical and basic research projects.

Register

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