Click on the icon below to learn about a University of Alberta research study aimed at improving memory function in children with prenatal alcohol exposure.

cogmed

Some of you may have read our post “Strongest Families Research Program” in May about an upcoming research study designed to help parents of children with FASD to deal with their child’s challenging behaviours. We promised to let you know when the study began recruiting participants, and that time is now! Parents, keep on reading to get help with parenting your child with FASD.

Sue Kobus, recruitment coordinator of the study, writes:

“Strongest Families has developed programs to help parents with their children’s behaviour problems. Strongest Families Programs are done on-line with weekly telephone calls from a personal Coach. The Coach provides support to families, answers questions and guides parents as they learn skills. Families do not have to travel to a centre to get help.”

Researchers are currently looking for families who have children aged 4-12 years, living in Canada, and have a FASD diagnosis to take part in the study.

To learn more or sign up, visit the website  (the website is being finalized. Please check back in a couple of days if it is not working) or contact the team at: FASDstdy@queensu.ca  1-877-341-8309, Menu #4

You can also click on the pictures below to learn more about the study and find sign up information.

Poster

Poster

Brochure P. 1

Brochure P.1

Brochure P. 2

Brochure P.2

 

Image source: http://winnipeg.ctvnews.ca/fasd-school-program-engages-students-with-video-game-1.1877439#.U6hPTmyJdeA.wordpress

In 2012, we posted “A Video Game that Actually Helps” about a video game called “Caribbean Quest” designed for kids with FASD.  The game aims to improve cognitive function and self regulation and has shown promising results thus far.

Caribbean Quest has been used with children on a one-to-one basis with a support coach and in small groups through the University of Victoria and and the University of Alberta. Research will now take place in larger groups at David Livingston School in Winnipeg to determine the efficacy of the game in a classroom setting.

Read/view news about the program through CTV Winnipeg 

Learn more about Caribbean quest through the University of Victoria

*Note: Given that iNAT researchers have been involved with the implementation of the program, we have received several questions regarding distribution of the game for public use. Unfortunately, the game is still in the “research” stages and is not currently available for public use. We will be sure to let you know if it becomes available!

 

Image source: http://lcfasd.com/

 

For the past 6 years, Lakeland Centre for FASD (LCFASD) has hosted summer camps specifically for kids with FASD. We are big fans of the work they do and have posted about their camps several times before. The camp employs FASD educated staff and provides children and teens with a safe environment in which they can  gain social skills and daily living skills while having fun outdoors.

 

Image source: http://www.survivorlakeland.com/

 

 

This year, in order to raise funds to build a new camp, 3 staff from the LCFASD will be participating in a “Survivor” competition in which they must complete challenges and battle the elements. Funds raised will go to the LCFASD summer camp. Survivor Lakeland is hoping to raise a minimum of $20000 for the organization. You can read a recent news article posted by the Cold Lake Sun on the competition and the LCFASD’s involvement or visit the Survivor Lakeland webpage to learn more about the competition and donate to the contestants (FYI Lakeland’s contestants are Tracey Knowlton, Tessa Mark and Tabrina Stenz).

LCFASD is also partnering with rainbarrel.ca to sell rain barrels to homes in the surrounding area in order to raise money. You can read more and order a rain barrel online to help them out.

If you are interested in registering your child for this year’s Lakeland Centre for FASD summer camp, the registration form can be found here.

For more information on Lakeland Centre for FASD’s supports and services, visit their website or send them an email at admin@lcfasd.com

Print

 

Keewatin Public School in Kenora, Ontario will soon introduce a program aimed specifically at FASD. The “Transitions North” program follows 2 already established FASD programs in Dryden and Sioux Lookout through the Keewatin Patricia District School Board.

Elements of the program include staff trained by FASD experts as well as a warm classroom environment with accommodations for the sensory needs of students, such as minimal distractions and sensory materials available for use.

To read about the Transitions North program (along with related articles on the implementation and success of the program in other cities in Ontario) read “FASD Program Coming to Keewatin Public School” through Kenora Online.

The Keewatin Patricia District school board was also previously involved with the “Eliminating Barriers Building Bridges” regional FASD research project, in which agencies sought to increase placement stability and improve outcomes for kids with FASD through enhanced support and understanding of FASD for teachers and caregivers.

To read more about the previous “Eliminating Barriers Building Bridges” program, click here. To read the final evaluation of the program, click here.

Image source: http://www.yukon-news.com/news/new-housing-opens-for-people-with-fasd/

 

Difficulty with independent living is an issue faced by many adults with FASD. Research by Streissguth et al. showed that approximately 80% of adults with FASD in their study were living dependently.1  Streissguth et al.2  found that living in a stable supportive home was a protective factor against adverse life outcomes for individuals with FASD.

The Options for Independence Society is attempting to make stable independent living arrangements more attainable by providing living space and supports for adults with FASD in Whitehorse. “Dun Kenji KU“, meaning “The People’s Place” opened in February in Whitehorse as a supportive housing building for those with FASD. The Options for Independence Society carried out the project with support from the territorial and federal governments and the city of Whitehorse.

The 14 unit building includes supports such as affordable rent, connections to community resources, and on site supports such as cooking, cleaning and maintenance assistance as well as the provision of one meal a day.

Those involved in the project hope that the housing complex will lead to decreased strain on emergency resources and improved quality of life for those with FASD through increased stability.

To read more about the housing program, see the news articles below:

New housing opens for people with FASD” in Yukon News

Options for Independence Opens New Residence”  in Whitehorse Daily Star

Options for Independence, Whitehorse YT” from Canada Mortgage and Housing Corporation

“‘Dun Kenji Ku,’ a place for people with FASD” on “Life in Yukon” Blog

References:

  1. Streissguth, A.P., Barr, H.M., Kogan, J., & Bookstein, F.L. (1996). Understanding the Occurrence of Secondary Disabilities in Clients with Fetal Alcohol Syndrome (FAS) and Fetal Alcohol Effects (FAE): Final Report to the Centers for Disease Control and Prevention. Seattle: University of Washington, Fetal Alcohol and Drug Unit.
  2. Streissguth, A.P., Bookstein, F.L., Barr, H.M., Sampson, P.D., O’Malley, K., & Young, J.K. (2004). Risk factors for adverse life outcomes in fetal alcohol syndrome and fetal alcohol effects. Journal of Developmental and Behavioural Pediatrics, 25, 228–238

 

FASD Intervention:

A great opportunity for girls in the Edmonton, AB area!

Originally posted on Edmonton and area Fetal Alcohol Network Society:

Summer Ad 2014

View original

strongest families

Strongest Families- Fetal Alcohol Spectrum Disorder is a research program developed by Nova Scotia’s Centre for Research in Family Health at the IWK Health Centre in conjunction with the FASD Research Program at Queen’s University. The program was devised in response to the need for services and supports for those with FASD as well as empirical data to influence the delivery of those services. Funding for the program has come from CIHR’s Partnerships for Health Services Improvement, NeuroDevNet, and the Public Health Agency of Canada.

The program uses input from key stakeholders to determine the need for services and supports and develop and evaluate a distance training program for parents/caregivers. The efficacy and feasibility of the intervention, as well as program outcomes, will be examined in a randomized control trial.

This research is interwoven with elements of knowledge translation, as researchers and knowledge users (i.e. families, health professionals, etc.) have been involved heavily in the process from the beginning.

The Strongest Families program has shown success in populations with neurodevelopmental disorders, and will be adapted for families with FASD. One advantageous aspect of the program is that it eliminates the need for families to travel to an intervention site on a regular basis, allowing participants to complete the intervention in their own homes and allowing the researchers to recruit participants from across the country.

The study team is currently building its recruitment network. If your clinic or organization is interested in supporting this trial by making study information available through your offices (posters/brochures) or websites, please contact Sue Kobus, Recruitment Coordinator at Queen’s University or Karen Turner, Study Coordinator at IWK Health Centre, Halifax, NS.

Recruitment will begin late spring 2014. Caregivers will be able to apply online.

Contact Information:

Dr. Patrick McGrath: patrick.mcgrath@iwk.nshealth.ca

Dr. James Reynolds: jnr@queensu.ca

Karen Turner: karen.turner@iwk.nshealth.ca

Toll-free: 1-877-341-8309 (menu item 4, then 1)

Sue Kobus: smk1@queensu.ca

Toll Free: 1-877-341-8309 (menu item 4, then 2)
Learn More

 

UofA-logo

 

Attention families of children with FASD in the Edmonton area:

The University of Alberta is currently conducting research in learning and behaviour for children with FASD ages 4-18. Two of these studies are intervention studies aimed at improving learning.

If you are interested in participating or if you would like to know more, please email labfasd@gmail.com or call Lauren at (780) 735-7999 ext. 15631.

 

 

Follow

Get every new post delivered to your Inbox.

Join 338 other followers